Category: MS News

Finding the Silver Lining 0

Finding the Silver Lining

Finding the Silver Lining Six summers ago, I was a broke artist living in her first NYC apartment. I was smoking, living on crackers and coffee, and refused to pay for an air conditioner and...

Information Overload 0

Information Overload

Information Overload Is anyone else getting tired of other people telling you how to manage your MS? “Eat this, not that.” “I read this book that told me you should be doing this.” “But...

The Power of “I Am” 0

The Power of “I Am”

The Power of “I Am” It’s so easy to get wrapped up in our own negative thoughts, especially with the number of symptoms we have. Do you ever say something to yourself like, “I...

Run a Myelin My Shoes 0

Run a Myelin My Shoes

Run a Myelin My Shoes We are “Run a Myelin My Shoes” (RAMMS), a team of 96 people from 25 U.S. states and 16 nations. 49 of us live with multiple sclerosis (MS); 47...

Cleats for a Cause 0

Cleats for a Cause

Cleats for a Cause While some symptoms of MS are visible, often times, they’re not. Symptoms like fatigue, numbness, tingling and mood changes can bring a chorus of, “But you don’t look sick” comments...

A Letter to My Body Five Years Later 0

A Letter to My Body Five Years Later

A Letter to My Body Five Years Later Three games of volleyball a night is getting a lot tougher than it used to be. I’m not sure if it’s because of my age (40...

The Reluctant Athlete 0

The Reluctant Athlete

The Reluctant Athlete In the months that it took for me to get my diagnosis, I became increasingly desperate for one. The 10 months that bridged November 2015 to September 2016 were a source...

Medicare Annual Election Period: What You Should Know 0

Medicare Annual Election Period: What You Should Know

Medicare Annual Election Period: What You Should Know The Medicare Annual Election Period (AEP), or Medicare Open Enrollment Period (OEP), has arrived. With approximately 25 to 30 percent of people with MS enrolled in...

Not How it's Always Been 0

Not How it's Always Been

Not How it's Always Been At work, have you ever asked why something is the way it is, and you’re told: “I don’t know… that’s just how it’s always been done.” Even just typing...

Fever Fatale 0

Fever Fatale

Fever Fatale “A fever could be life threatening.”   That single line from an old episode of “The West Wing” prompted me to immediately Google whether, in fact, a fever is fatal to someone...

Thank You for Your Service 0

Thank You for Your Service

Thank You for Your Service As we prepare to celebrate Veterans Day, my husband Nick and I look forward to a very special phone call that we get—a call from our oldest son, Nicholas,...

Dear Me 0

Dear Me

Dear Me Dear Me, of three years, nine months, and 15 days ago: Your life just changed. Changed from six weeks ago before this all started. Changed from 5 a.m. this morning when Mike...

I Got 99 Problems and 87 of Them are Side Effects 0

I Got 99 Problems and 87 of Them are Side Effects

I Got 99 Problems and 87 of Them are Side Effects When I was first diagnosed about 5 years ago, I was prescribed Rebif, which is a subcutaneous injection, injected 3 times a week....

Through It All 0

Through It All

Through It All I wrote a poem when I was graduating from college with my bachelor’s degree. The struggle I had to endure to reach my goal to graduate was rough. I was diagnosed...

Changing Your Perception 0

Changing Your Perception

Changing Your Perception A few weeks ago, I went to a class called “Forget Your Fear & Trust Your Truth – A Personal Growth Workshop” held at Happier Valley Comedy in Hadley, MA by...

Time for an MRI 0

Time for an MRI

Time for an MRI My appointment is at 3:30 p.m.   Some 25 miles away from my home.   The clock says it’s only 12:53 p.m..   Although it won’t be rush hour when...

Emerging Therapies: From the Lab to the Clinic 0

Emerging Therapies: From the Lab to the Clinic

Emerging Therapies: From the Lab to the Clinic One of my takeaways from the 2018 ECTRIMS meeting this week is that there are thousands of researchers around the world working hard to figure out...

Diet Matters… and It Matters Now 0

Diet Matters… and It Matters Now

Diet Matters… and It Matters Now Greetings from ECTRIMS, the 34th Congress of the European Committee for Treatment and Research in MS. This is a lion of a meeting–the world’s largest gathering of researchers...

Imaginary Pain 0

Imaginary Pain

Imaginary Pain The buzzing throughout my arms, hands, legs and feet had not let up for 3 full days. My annual checkup with my neurologist was just a day away, so I figured, what...

Driving My MS 0

Driving My MS

Driving My MS In early 2009, I decided to buy a new car.  The previous few years had been a whirlwind of events, including the birth of our first child, big career changes, finishing...